CNN:
Have You Been Misdiagnosed?
Since
Fall 2004 when I learned I had
been misdiagnosed with cancer, I
have worked diligently to make
patients aware of the pitfalls
of American Healthcare -- and
what they can do to help
themselves find their best
medical outcomes.
So you
can imagine, I was thrilled to
share my story -- and ideas
about misdiagnosis -- with CNN's
Elizabeth Cohen, for her
Empowered Patient column.
She did a wonderful job of
helping patients understand the
possibility of misdiagnosis and
the red flags that indicate they
need to look further.
In
addition to the
thoughts shared in Ms. Cohen's
column, I offer some
additional
food for thought:
There
are three types of misdiagnosis,
any of which could apply to you:
-
Patients are diagnosed with the wrong
disease or condition. (most
frequent)
-
Patients are diagnosed with a disease
or condition, and there is
nothing really wrong with him.
(least frequent)
-
Patients are told nothing is wrong
with them, when, in fact, a
medical problem truly does
exist.
Additional
red flags that could indicate
you've been misdiagnosed:
- Trust your intuition. If
you even suspect you may have
been misdiagnosed, it's a good
idea to research further.
It can't hurt to know much more,
so trusting your intuition --
even if you find out later that
you were not misdiagnosed -- can
help you regardless.
- If
your doctor gives you a name of
a diagnosis, and you can't find
reference to that name on the
internet, there are two
possibilities. First,
you may have
misunderstood the name, so
you'll need to ask your
doctor for clarification.
Second, your
doctor may be making up a name, just
to give you something to hang
your hat on. Dr. Jerome Groopman, in his book
How
Doctors Think, does a great job
of describing this phenomenon.
- If
you get a hold of your medical
test results, and you find
discrepancies between what the
report says, and what the
internet says the results should be for
your diagnosis, then you'll want
to check further to find out why
there is a discrepancy.
- If
you haven't been honest with
your doctor to begin with, then
you may be misdiagnosed based on
your own bad information.
Next week,
Ms. Cohen will follow up her
article with instructions about
what you can do if you suspect
you have been diagnosed.
I'll follow up then, too.
If you'd like to be notified of
updates to this story,
please
add your email address to our
notification list.
Or -- check
out Trisha's blog at:
www.EveryPatientsAdvocate.com/blog.
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